Summer 2024, Issue 1 - read it below or see a PDF of this issue.
You are part of a large and unique effort. Every participant counts. We took a snapshot of those currently enrolled in CAMEO:
229 participants in the study
18% between 6-9 years old
34% between 10-13 years old
48% between 14-17 years old
On the map below, find your CAMEO site. You can also see all the states and provinces where participants can enroll.
The CAMEO study has study sites that are highlighted in this map of the US and Canada. These states and provinces are highlighted: Alberta, Arizona, California, Connecticut, Georgia, Indiana, Maryland, Massachusetts, Michigan, New Jersey, New York, North Carolina, Ohio, Ontario, Pennsylvania, Rhode Island, Washington, Wisconsin
Thank you for your participation!
May 19: Mark Your Calendar
Did you know that May 19 is World IBD Day? The goal is to raise awareness and create community and connection all over the globe. Find out about 2024 events at worldibdday.org
Regarding “Remission”
Crohn's Disease is a chronic inflammatory bowel disease (IBD) that at this point, does not have a known cure. This is why the goal of therapy is “remission.”
There are five kinds of Crohn’s disease remission:
“Clinical Remission” - All symptoms are gone. It might also mean that a child is reaching growth milestones in physical development.
“Laboratory Remission” - All laboratory test results are within a normal range.
“Endoscopic Remission” - The bowel lining that the doctor sees looks healthy through the colonoscope (camera).
“Histologic Remission” - Biopsies (tissues) show no signs of inflammation when viewed with a microscope.
“Transmural Remission” - Images of the bowel, taken with an MRI, show no inflammation.
“Remission” does not mean “cure.” Remission does not mean the bowel inflammation has resolved for good. Bowel inflammation could come back. A few signs of inflammation are swelling and pain.
For patients who reach remission, the goal is to maintain it. Maintaining remission could mean fewer disease flare-ups, which could make the need for surgery less likely in the future.
Doctors look at remission of Crohn’s disease in more than one way. One person can have more than one kind of remission. The more kinds of remission, the better.
We know that even when symptoms go away, there may still be bowel inflammation. That is why doctors monitor lab tests and may periodically repeat a colonoscopy or an MRI to look for inflammation.
Watch for future CAMEO newsletter issues for more updates like this. Thank you for your participation!
The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. CAMEO is funded by the National Institutes of Health (NIH) through the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Research reported in this publication was supported under Award Number 1U01DK134356-01.